Living With PBC
If you have recently been diagnosed with PBC, you may feel overwhelmed and unsure of what steps to take next. Dealing with a rare disease can also be frustrating as your family and friends may not fully understand what the diagnosis means. Unfortunately, because of former name, “cirrhosis,” many people incorrectly assume that PBC is a result of alcohol abuse. While a diagnosis of PBC is not related to alcohol consumption, this stigma sometimes creates embarrassment when sharing and seeking information about the disease.
If you have been living with PBC for many years – your experience could be quite different. While you have likely educated yourself and your loved ones about the disease, treatments, and symptom management, you may be eager to find new people to connect with and learn about the latest advancements in treating PBC.
No matter where you are in your personal patient journey, arming yourself with the facts about PBC can equip you to be a more informed patient. Knowledgeable conversations between you and your doctors can lead to better disease management and less uncertainty in your day-to-day life.